Facebook: https://www.facebook.com/PMSF22q13

PHELAN-McDERMID SYNDROME FOUNDATION (pmsf)

Phelan-McDermid syndrome is a rare genetic disorder that can affect many critical functions in a person’s body, from learning and communicating to eating and sleeping. The Phelan-McDermid Syndrome Foundation is doing everything it takes to make today better and the future brighter for everyone living with this complex condition – from the moment of diagnosis to the delivery of treatments and cures.

Join the Phamily:
Families supporting families is the driving force behind the Phelan-McDermid Syndrome Foundation. Started by families who understand both the beauty and barriers of having a child with this life-altering condition, we’re here to bring hope, help and answers now. We welcome new families to our growing community almost every day, supporting and connecting you through online support groups, local reps who provide one-on-one help, and regional and international gatherings.

Caregiver Support Groups:    https://pmsf.org/family-support
Living with a Phelan-McDermid syndrome diagnosis can be challenging. There are good days and days you would rather forget. Sometimes, just talking or listening to someone can help. There is comfort in knowing others may be experiencing something similar to what you are going through. We have a new Caregiver Support Group program where family members share their different perspectives on living with Phelan-McDermid syndrome.