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The ALD Alliance was established to help families across the United States that are newly diagnosed with adrenoleukodystrophy (ALD) by providing them with current and functional information to cope with and fight this rare and devastating disease. This fight begins by making sure every baby born in the United States is tested at birth for ALD and will one day end with a cure. We support and encourage those who are afflicted and their families as they struggle to endure, adjust, and cope with the demands of the disease.
Financial Support:Â
Aidan’s Gifts helps families in the United States who face extreme financial stress attributed to the costs associated with caring for a child with ALD. Requests are granted on a case-by-case basis and are limited to meeting needs that will enable an affected family to provide the best possible care for their child.
Many times families come to the Foundation for assistance with a unique need – travel expenses associated with treatment, a wheelchair lift to enable a family to safely travel with their child or assistance in purchasing a vehicle to accommodate their child’s equipment needs. These are only a few examples of ways Aidan’s Gifts have helped our families focus on what matters most – caring for their child!
For more information on Aidan’s Gifts, please contact: Elisa Seeger elisa@aldalliance.org
Serves the United States.
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