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About HDSA:
The Huntington’s Disease Society of America (HDSA) is the premier nonprofit organization dedicated to improving the lives of everyone affected by Huntington’s disease. From community services and education to advocacy and research, HDSA is the world’s leader in providing help for today, hope for tomorrow for people with Huntington’s disease and their families. In the battle against Huntington’s disease no one fights alone. At HDSA — family is everything!
A Caregiver Guide for HD Families:
HDSA’s A Caregiver Guide for HD Families provides tools for caregivers to help them at home with their loved one with HD. Professionals in the field who work with persons with HD and their families were instrumental in providing content. In preparation for developing the guide, HDSA surveyed the HD community in order to better understand the issues, behaviors and situations that most impact family caregivers.
Click here to download your copy of the Caregiver Guide! https://hdsa.org/wpcontent/uploads/2016/05/HDSA_CaregiverGuideFamilies_Final.pdf
To find resources, support groups and chapters in YOUR area: https://hdsa.org/about-hdsa/locat re-resources