STATUS: Open
SERVICE AREA: United States
CLIENTS SERVED: Children and young adults diagnosed with Duchenne muscular dystrophy (DMD), and their families and caregivers.
DESCRIPTION: Team Joseph’s Duchenne Family Assistance Program (DFAP) provides personalized guidance, financial assistance, and practical support to families affected by Duchenne muscular dystrophy. The program helps families obtain necessary medical equipment, improve home accessibility, access specialized medical care, and manage unexpected expenses. Assistance also includes navigating insurance challenges, government benefits, and community resources.
PROGRAMS/SERVICES:
- Medical Equipment Assistance: Financial assistance and guidance for obtaining wheelchairs and other necessary equipment not covered by insurance or denied by an insurance provider.
- Home Accessibility Modifications: Financial assistance and resource referrals for wheelchair ramps, accessible bathrooms, and other modifications that improve safety and accessibility within the home.
- Medical Travel Assistance: Financial support for travel expenses associated with appointments at specialized Duchenne clinics and medical providers.
- Accessible Vehicles & Modifications: Financial assistance and resources for purchasing wheelchair-accessible vehicles or modifying existing vehicles to accommodate mobility needs.
- Government Benefits & Insurance Navigation: Assistance understanding and accessing Medicaid waivers, SSI, Medicare, housing programs, and other benefits, including guidance with insurance coverage challenges.
- Emergency Financial Assistance: Support for unexpected expenses and urgent needs affecting individuals with Duchenne and their families.
- Family Guidance & Mentoring: Personalized assistance, emotional support, and help identifying services and resources to address changing care needs.
RAMPS:
- Types: Residential wheelchair accessibility ramps that provide safe entry and exit from the home. Contact the organization for information about ramp materials and configurations.
- Availability: Assistance is considered based on individual circumstances and available resources.
- Cost: Financial assistance may cover some or all ramp expenses. Funding amounts and any family contribution are determined individually.
HOW TO APPLY: Complete the Duchenne Family Assistance Program application to request assistance. For questions or help getting started, call 833-428-3301, email info@duchennefap.org, or submit the DFAP Contact Form to connect with a case manager.
Suite 204
West Bloomfield Township
Michigan
48322
United States